Sunday, February 19, 2017

walking on [frozen] water


We are in the anticipated final months of this kid's treatment for Acute Lymphoblastic Leukemia. We'll never be the same after how our lives changed on April 10, 2014. We are grateful for how well he has responded to treatment and it is our fervent prayer that will continue. 1 more sedated lumbar puncture with spinal chemo injection, 4 more monthly IV chemo infusions, 4 more (5-day) rounds of themuch-loathed oral steroids, and daily at-home oral chemo until June 11. We are so close! He will be followed closely by the incredible paediatric Oncology team in Victoria for one full year after "end of treatment", easing off to every three months for another two years, then every six months for a while until finally once a year, for the rest of his childhood. He'll then be followed by his adult physician ... wherever his path in life shall take him. So "the end" is never really truly "the end", but we are so very much looking forward to living a simpler life with our thriving boy. My heart aches to write these words as I know far too many families who did not experience a happy ending. 

🎗 #childhoodcancer ðŸŽ— #kidsgetcancertoo ðŸŽ— #notrare ðŸŽ—

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