Wednesday, May 7, 2014

Admission: May 7

Jaxon's blood counts kept us all on our toes again today. Docs have been watching his complete blood count closely, trying to sort out what's been going on these past few days. Overall he has been much happier and more comfortable, but a few things have lingered that require attention. The kidney issue seems to have resolved. We're waiting with great anticipation for him to toot and poop. He was given the go-ahead to eat whatever he desired today, so that greatly helped improve his disposition.

One concern with his blood count is his coagulation (clotting) factor. It was extremely high, off the charts, putting him at high risk of bleeding that cannot easily be stopped. With his final lumbar puncture and bone marrow biopsy scheduled for tomorrow, his clotting factor needed to be brought back within normal range. (The higher the number, the longer it will take for his blood to clot.) He was given a transfusion of a blood product called Cryoprecipitate. I don't really know what it is. The expectation was that this transfusion would correct his really high clotting factor. Just a few minutes into the transfusion, he started coughing lightly, and it lasted for several minutes. There are a few things that could cause that and I won't explain everything. The short story is that he seems to have had an allergic reaction to the Cryo - a potential risk for any person receiving any type of donated blood product. He was given Benadryl, the coughing subsided, and the transfusion was started again. He handled the rest of it very well. Blood work came back to show that his coagulation factor is back within (or very close to) the normal range. Earlier today the coagulation factor was at about 105. After the Cryo worked its magic, it came back down to about 26.

His blood pressure has been higher than our nurse is pleased with tonight. The steroid he's been on is known to elevate BP. She is talking to the Doc to see if they want to give him something to bring it down.

As long as there are no further complications overnight, the plan is to have his final procedure in the clinic first thing tomorrow (Thursday) morning. We are scheduled for 8:00, but could be bumped for various reasons.

We are not sure how long we will have to wait for the results of tomorrow's biopsy, but our Top Doc is highly optimistic that it will show no more cancer cells in our boy! We hope and pray that will indeed be the case.

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