Thursday, April 17, 2014

April 17

Quiet day for us at BCCH. Jaxon's procedure* this morning went well. He's been feeling tired and woozy so has been resting a lot. He had three days of decreasing hgb so they transfused him and he went from 76 on Wed morning to 102 today! Tomorrow we will rest and visit with some special folks. IV chemo on Saturday. We expect to be discharged over the weekend and be back to see our oncologist in the clinic on Tuesday. He and I will be staying with my cousin here in Van for most of the remaining 3 weeks. Pray for his energy to bounce back tomorrow.

*Intrathecal Methotrexate

"Intrathecal" describes the fluid-filled space between the thin layers of tissue that cover the brain and spinal cord. Medicine can be injected into the fluid or a sample of the fluid can be removed for testing. Chemotherapy given intrathecally can kill cancer cells throughout the brain and spinal cord. 

(Jaxon receives IT MTX 3 times in this initial induction phase of treatment as a preventative measure. His spinal fluid showed no signs of cancer at time of diagnosis.)

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